My Prolactinoma Diagnosis

In October 2023, my life took an unexpected turn during a visit to my endocrinologist. I remember my younger brother driving me to the impromptu appointment my doctor had scheduled the evening before. We’ve all felt that sinking feeling when a doctor asks us to come in immediately, insisting that the news can't be shared over the phone.

 

Leading up to this appointment, I had undergone an MRI of my brain to check for a tumor on my pituitary gland (see image below). The pituitary gland, often called the 'master gland,' is a small, pea-sized gland located at the base of the brain. It plays a crucial role in regulating various hormones throughout the body, controlling essential functions like growth, metabolism, and reproduction. I was so sure the results would be normal. I told myself this story and fully believed it. But sitting across from my doctor, I received news I wasn’t prepared to hear. She confirmed that I had a Pituitary Microadenoma—a small mass on my pituitary gland—that was a functioning tumor secreting the hormone prolactin, also known as a Prolactinoma. When a Prolactinoma affects the pituitary gland, it can disrupt the balance of hormones, leading to various symptoms and health issues.

An MRI revealed a pituitary tumor, critical for determining its size and shape for diagnosis and treatment.

 

To say I was devastated is an understatement. Disbelief washed over me, and I couldn’t comprehend why this was happening to me. My doctor reassured me that these types of tumors are benign(non-cancerous), meaning I didn’t need a biopsy or surgery. We had caught it early, and the tumor was small. Yet, I sat there, my mind numb, unable to fully grasp the gravity of the situation.

 

She laid out my treatment plan: a medication called Cabergoline to shrink the tumor, MRIs every six months to monitor its size, and routine blood work to keep track of my hormone levels. I left that appointment feeling hopeless. Yes, me—the girl with faith tattooed on her wrist—felt none of it that day. My brother tried to console me on the way home, assuring me that I would be okay, but I couldn’t feel anything. My body was in shock.

 

I called my family, tears streaming down my face, to tell them about my diagnosis and to let them know I would need their support. I made the same calls to my close friends, realizing I couldn’t face this journey alone.

 

Receiving this diagnosis solidified my commitment to my healing journey. In that moment, I knew the miracle I needed would only come from God. It became a process of surrendering—me and God. I placed it all in His hands.

 

This diagnosis has taught me the profound importance of prioritizing my health. I now live with more zeal, more purpose, and a deeper appreciation for the simple moments in life. Every day is a blessing, and I’m incredibly grateful for each one I wake up to experience. My purpose is now at the forefront of everything I do—no longer something I can ignore, because I understand how precious time is. I honor my space and strive to show up authentically in all aspects of my life.

 

I am convinced that if God hasn’t removed this tumor, He is using it to transform me. And indeed, I am changed—enough to share my story with you. My hope is that by being open about my journey, someone else going through this can find comfort in knowing they are not alone.

 

Some helpful resources I’ve leaned on during this journey include the Pituitary Foundation, therapy, and the courageous testimonies of others shared on YouTube, Facebook, and TikTok. I’m still learning so much as I go, and I’ll continue to share updates along the way.

 

Thank you for taking the time to read my story. Feel free to connect with me, and please keep me in your prayers!

Prolactinoma - Key Points
Prolactinoma is a type of non-cancerous tumor that develops in the pituitary gland, leading to the overproduction of prolactin, a hormone essential for various bodily functions. In women, this condition can result in a range of symptoms, including irregular periods, infertility, and unexpected breast discharge. Men may experience issues such as a decrease in sex drive and impotence, significantly impacting their quality of life. To accurately diagnose prolactinoma, healthcare professionals typically rely on a combination of blood tests and MRI scans to assess hormone levels and the tumor’s presence. Treatment options often include medications that help reduce prolactin levels or, in some cases, surgery may be necessary. Fortunately, most individuals diagnosed with prolactinoma see a notable improvement in their symptoms after appropriate treatment is initiated.

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